The coverage gained from exposure in the established media (both TV & Press) is far more wide-reaching than the exposure I gain just by “walking” and talking to the people who I meet. So when it comes to raising awareness, exposure in the established TV & press is always being sought. To date, previous walks have been covered by: STV (the national TV broadcaster in … Continue reading Kilted Walker in the Media
Major Supporters: This was to be my second attempt at walking around Arran (the first attempt being in 2016, just before my 500-mile walk in Spain, an attempt which was abandoned as I was feeling much better than expected). The overall goal was the same though: I wanted to test my long-distance walking abilities locally, before venturing further afield. But this time, I would not … Continue reading But First: A Walk Around the Isle of Arran, Scotland.
December 2017. Winter Wonderwheels (Dorney Lake, Windsor, UK). Due to the progression of my ataxia, this was probably my final fundraising “walk”. And what a high note to end on. I was invited to take part in the Celebrity Relay, with team captain, and Gold Medal winning Paralympian superstar, Susie Rodgers MBE, “competing” alongside Jonnie Peacock, Adam Hills and a whole host of MBEs/CBEs … Continue reading Previous Walks.
Ataxia UK is a registered charity, and is the official ataxia charity here at home. Funds that they raise are used to fund medical research into an eventual cure for ataxia. A cure that Ataxia UK hope to find by the year 2020 (their “2020 Vision”). Ataxia UK also support existing ataxia patients in the UK. However, Ataxia UK relies solely on donations to fund … Continue reading Donate to Ataxia UK.
I was diagnosed with spinocerebellar ataxia (idiopathic) in March 2015. This was the result of 17 months of medical tests, following a number of mysterious falls that I had suffered. Ataxia comes in many forms and is incurable. And worse than that, it is progressive too. Meaning that the symptoms get continually worse. The best description of ataxia that I have heard, comes from Ataxia … Continue reading Ataxia and Me.