MND Scotland’s purpose-built accessible lodge gets the go-ahead. MND Scotland is investing a quarter of a million pounds to build a brand new, bespoke accessible lodge, as a part of their accessible holiday service. Construction of the state-of-the-art disabled-friendly lodge, which has been specially designed with MND in mind, will begin towards the end of…

Rare Disease UK, created by the Genetic Alliance, is the national campaign for people with rare diseases and all who support them. Genetic Alliance UK is an alliance of over 200 patient organisations who support those affected by all types of genetic conditions. Providing a united voice for the rare disease community by capturing the…

Even after 30 years of traveling, this event, which happened in Moscow in 2013, is one of the most amazing travel experiences of my life: Towards the premature end of my 2013 “round the world by train” trip, I found myself in Moscow. I was already aware then that something “wasn’t quite right”, and that…

Due to the progression of my own ataxia, Winter Wonderwheels was probably my last fundraising “walk” (but most definitely NOT my last ataxia fundraising/awareness-raising event). And there’s nothing better than “Going Out with a Bang”. The team. With team captain, Gold Medal winning Paralympian Susie Rodgers MBE. It was such an amazing day, being surrounded…

To mark the UN’s #InternationalMountainDay, here is my favourite photograph – taken in 2012, just a year before #ataxia struck. The photograph is of myself sitting on top of a mountain on Mallorca, on the famed GR221 route (near Puig de Massanella). I also love this photograph because it shows just how quickly, and without…

From now until midday on 5th December, all donations will be DOUBLED.

If I ever park my kilted backside in the one place for long enough to hang a Christmas Stocking, then I hope to find this book inside it on Christmas Day. This book will change your life – for the better. You don’t need to be disabled, or know anyone who is, to really enjoy…

I was first introduced to the #pinksocks phenomenon by Alan Thomas, from ataxiaandme.org, almost a year ago. And it was during my first real-life meeting with Alan yesterday, in Barcelona*, that I became a very happy member of the #pinksocks tribe. So what’s all this #pinksocks about? Connection. A personal connection. [photo, of some very…