MND Scotland to invest £250,000 in new accessible holiday lodge.

MND Scotland’s purpose-built accessible lodge gets the go-ahead. MND Scotland is investing a quarter of a million pounds to build a brand new, bespoke accessible lodge, as a part of their accessible holiday service. Construction of the state-of-the-art disabled-friendly lodge, which has been specially designed with MND in mind, will begin towards the end of 2018. Craig Stockton, MND Scotland’s Chief Executive, said: I’m delighted … Continue reading MND Scotland to invest £250,000 in new accessible holiday lodge.

#RareDiseaseDay – 28 February 2018

Rare Disease UK, created by the Genetic Alliance, is the national campaign for people with rare diseases and all who support them. Genetic Alliance UK is an alliance of over 200 patient organisations who support those affected by all types of genetic conditions. Providing a united voice for the rare disease community by capturing the experiences of patients and families. Please show your support on … Continue reading #RareDiseaseDay – 28 February 2018

Winter Wonderwheels 2017. What a day!

Due to the progression of my own ataxia, Winter Wonderwheels was probably my last fundraising “walk” (but most definitely NOT my last ataxia fundraising/awareness-raising event). And there’s nothing better than “Going Out with a Bang”. The team. With team captain, Gold Medal winning Paralympian Susie Rodgers MBE. It was such an amazing day, being surrounded by some truly inspiring people (and a few celebrities among … Continue reading Winter Wonderwheels 2017. What a day!

International Mountain Day 2017.

To mark the UN’s #InternationalMountainDay, here is my favourite photograph – taken in 2012, just a year before #ataxia struck. The photograph is of myself sitting on top of a mountain on Mallorca, on the famed GR221 route (near Puig de Massanella). I also love this photograph because it shows just how quickly, and without warning, ataxia strikes: 2012, sitting on top of a mountain … Continue reading International Mountain Day 2017.